Monday, June 6, 2011

Keeping my eye on the prize

When I first heard the diagnosis, End Stage Liver Disease, I was devastated.  I was sick, confused and felt alone in the world.  I almost threw in the towel right then.  Thank goodness for my family.  They took care of me and got me well enough to face this hideous disease.
I began to get my physical health back.  It was slow going.  It seemed like every 2 steps forward, I took 1 back.  The symptoms hit me hard.  Anemia, Ascites, bleeding, and pain to mention a few.  Worst of all has to encephalopathy.  Some call it brain fog and I am have to agree that is an accurate description.  The medications slowly brought my symptoms under control and life was looking better.  However, every time I began to feel well.  Bang! Something would knock me  for a loop.  I have come to accept that my health is only going get worse, but I will not give up.
This is when I started working on mental health.  No I am not insane, but facing such an awful disease can get you down.  I see a therapist who has done as much to keep me going as any of the doctors.  He had me get my life in order.  First the practical things, finances, family and things like last wishes and A health care proxy.  Once all the clutter of daily was cleaned, he had me focus on my spirit and faith.  This led me down a path of renewal in face of death.  I am at peace with myself and ready to fight the good fight accepting whatever outcome awaits.  I function with the attitude to make good day count and enjoy life.  In hindsight I wish I had done this my whole life.
I hope this will help someone.  Please comment or make suggestions on this topic.  I am sure people would like to hear what others are doing to enjoy life.
Remember....   MAKE EVERY DAY COUNT!

2 comments:

  1. Hang in there Brendan!! I'm so glad that you have started this blog and I hope that others find it. I know that a community of people who are suffering with the same health issues as you, will find comfort in the support. I think of you everyday and know that you will get through this!

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  2. Cheryl McCarty GassmanJune 6, 2011 at 8:25 PM

    Brendan, I don't even know what to say - I just want you to know that you've got people who think of you A LOT. I don't always think much about prayer, or about meditation, or whatever, but I do believe, I DO BELIEVE, that the more positivity we put out there, the better place the world is. I'm so glad you started this and I look forward to hearing more from you.

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